We are happy to announce the date of this year’s annual Caregiver Conference will be Friday, June 14th, 2019 from 8:30 to 4:30pm. Mark your calendars so you can be sure to join us for a day of education and support! 

The Penn FTD Center’s annual Caregiver Conference is for people with FTD, their caregivers, family and friends to access information and support that is essential to their FTD journey. With presentations from leading experts in neuropsychology, clinical care, genetics and cognitive neuroscience, participants get the latest research-based insights and information about innovative treatments and diagnostics offered at Penn. We aim to empower caregivers by highlighting practical strategies for caregiving. Presentations will address everyday challenges and concerns, including legal considerations related to FTD, and you’ll have a chance to network with other caregivers and advocates.

New this year: we are including more break-out sessions so you can tailor your experience to include more personally relevant information. You’ll have the opportunity to learn more about specific clinical diagnoses and can join discussions of specific caregiving challenges.

Presentations at the 2019 conference will include a morning discussion of the genetics of FTD by David Irwin, MD. Dr. Irwin will break down what we know about the role of genetics in dementia, how to get information for you and your family, and how we are using genetics in our research studies. In the afternoon, Lauren Massimo, PhD, CRNP, will discuss decision-making in advanced illness. Dr. Massimo’s presentation includes practical information about choosing a palliative care team, health and safety concerns for people whose disease has progressed, and finding quality home or residential care.

Breakfast, lunch, and afternoon coffee will be served.

Be on the lookout for advanced registration to open in March!