During his talk, Estate lawyer Paul Feldman described a few pragmatic steps that can help with legal and long-term planning. Here we outline the main points for your reference.

In addition, we provide some links to helpful online resources that can help you better manage care for your loved one.

Legal and Long-term Planning

  •  It is never too early to talk about and plan for the future.
  • Analyze all financial, legal and social long term care factors as early as possible. This will help to determine your options and legal strategy as to how you will provide and implement an appropriate plan of care. Be sure to consider the individual’s declining health and personal preferences.
  • Any individual diagnosed with FTD should execute a medical and financial Power of Attorney, designating an Agent to make decisions for them. While some patients may be still capable of making decisions themselves, this is to prepare for the time when they will not be able to do so.
  • A person with FTD who separates from employment should always immediately submit an application for Social Security Disability Income, both for themselves and for minor children.  They should also apply for any employer provided private disability insurance coverage, to partially replace salary.
  • Pay attention to traditional estate planning issues, such as changing your Will, retitling assets out of joint names, and changing beneficiary designations on life insurance and retirement accounts.

Links to Community Resources

  • CareFinder – Online guide sponsored by the Alzheimer’s Association that provides information and can help in the search for the right care option.
  • Nursing Home Compare –  Detailed information about every Medicare and Medicaid-certified nursing home in the US.
  • Eldercare Locator – A public service of the U.S. Administration on Aging. Includes a wide range of home and community services. Linked with Area Agencies on Aging.
  • Local Area Agency on Aging – A resource for home and community-based services for older adults and family caregivers, including respite care and housing options.
  • Long-Term Care Ombudsman – Funded by US Office on Aging and operated by NCCHCR. Provides consumer education and advocacy for long-term care residents.
  • Long-Term Care Community Coalition – Devoted to improving care for the elderly and disabled.  Works to ensure that long-term care consumers are cared for safely and treated with dignity.