The 2016 FTD Caregiver Conference began with morning talks to help caretakers better understand their loved one’s condition. These presentations highlighted our Center’s ongoing research on frontotemporal degeneration, primary progressive aphasia, amyotrophic lateral sclerosis, corticobasal degeneration, and progressive supranuclear palsy.
We all get overwhelmed. Claire Day, from the Alzheimer’s Association Delaware Valley Chapter, has some tips for handling the stress that can come with being a loving and dedicated caregiver.
During his talk, Estate lawyer Paul Feldman described a few pragmatic steps that can help with legal and long-term planning. Here we outline the main points for your reference.
In addition, we provide some links to helpful online resources that can help you better manage care for your loved one.
At this year’s Caregiver Conference, Anna Yung, BSN, RN discussed Caregiver Strategies for Symptom Management. Lauren Massimo, PhD, CRNP discussed what symptoms to expect as FTD progresses and ways to reduce complication and improve quality of life in advanced-stage FTD.
Here is a taste of what was covered during these talks.
A diagnosis of frontotemporal degeneration is frightening, and full of the unknown. At this year’s conference, Gary and Lisa Radin told the story of their journey with FTD with hope, inspiration, and grace. Continue reading “CRISIS. COURAGE. RESOLVE. A Caregivers Journey”
The 2016 FTD Caregiver Conference was held on Friday, May 20, 2016. Here is a brief look back on the day. A big thank you for those who were able to join us.
PET Scan Studies
The Penn Frontotemporal Degeneration Center is currently conducting research to improve our ability to diagnose neurological conditions such as Alzheimer’s disease, Mild-Cognitive Impairment, Parkinson’s disease, Lewy body disease, Frontotemporal degeneration, Primary Progressive Aphasia, Corticobasal Degeneration, Progressive Supranuclear Palsy, Multiple System Atrophy and Amyotrophic lateral sclerosis with frontotemporal degeneration. The underlying cause of these conditions cannot be determined from a clinical assessment alone. Continue reading “Now Enrolling!”
Here, we discuss novel insights into FTD-related diseases made possible through the analysis of patient data from the Brain Bank.
Amy Price is a graduate student in the Neuroscience Graduate Group at the University of Pennsylvania and has been a member of the Penn FTD Center since 2011. Amy originally hails from Yellow Springs, Ohio and received a Bachelor’s of Science degree in biochemistry from the University of Florida. Having successfully defended her thesis this spring, Amy is now preparing for the next step in her career: in the fall of 2016, Amy will begin a post-doctoral fellowship with Dr. Uri Hasson at Princeton University!